Patient Reported Outcomes

• Morbidity, success rates, side effects, adverse events, mortality, quality of life, patient preference, patient or provider satisfaction, patient adherence (compliance and persistence)
• Experience in developing and applying health surveys (patients and general public), in leading focus groups and Delphi panels
• And in chart reviews, analyses of longitudinal databases or patient registries and analyses of linked administrative databases
• And combination of approaches
• PRO instrument development and psychometric validation studies
• Extensive experience in measurement of quality of life using disease-specific instruments for maximum sensitivity, generic scales or indices (e.g. SF-36), and utility elicitation using utility-based indices (HUI, EQ5D) or direct patient measurement (standard gamble, time trade off)
• Also discrete choice experiments and willingness-to-pay studies
• In-person or telephone interviews or self administered (all either in electronic or traditional pen and paper formats)
• Electronic applications such as touch screen templates or web based tools